Project Details

Specific Aim: This study aims to (a) evaluate the feasibility and acceptability of a dyadic digital storytelling (DDS) intervention for adolescents and young adults (AYA) with cancer, (b) assess the preliminary efficacy of the intervention, and (c) explore shifts in participants' perspectives through the DDS intervention. 

Rationale & Innovation: AYA with cancer need holistic psychosocial care for complete well-being. How they perceive themselves and their experiences influences the development of their psychosocial strengths. Storytelling is an effective tool for shaping perspectives, processing emotions, and reframing challenges. This project introduces an innovative, nurse-led, relationship-focused online storytelling method to promote the psychosocial well-being of AYA through a dyadic approach. 

Approach: A single-group pretest-posttest design will be employed. Eligible AYA (n = 30), diagnosed with cancer between the ages of 15 and 24, will invite their meaningful person as a partner for the online DDS intervention. The intervention will consist of five weekly online storytelling sessions between the AYA and their storytelling partner, during which digital stories will be created and shared. Feasibility/acceptability benchmarks, preliminary efficacy, and changes in their perspectives throughout the intervention will be assessed. 

Potential for Translational Application & Future Patient Benefit: By emphasizing collaborative, relationship-centered care, this project aligns with the funding priorities to develop integrative and complementary therapies that enhance overall well-being, ultimately supporting AYA in achieving a flourishing future. Our storytelling intervention has the potential to be well integrated into clinical settings to improve the psychosocial well-being of AYA with cancer. By fostering positive perspectives and relationships, this approach could enhance the quality of care and be adapted for use in other areas for AYA with cancer.