recent publications
Sandra Mott is an Associate Professor of Nursing at Boston College and has been a faculty member for over 20 years as a member of the Maternal Child Health Department. She completed her undergraduate work in Illinois, received her Masters degree from Boston College, and is completing her doctoral dissertation at University of Rhode Island. Her major teaching responsibilities are with the undergraduate students for both theory and clinical courses covering the entire scope of child health nursing. She was the senior editor and contributor for a major pediatric text that emphasized the importance of collaborating with family members in the planning and providing of care for children. Her current research focus centers on how parents perceive their life and the adjustments and adaptation they make when their child has a complex cardiac disease (Hypoplastic Left Heart Syndrome) that requires multiple hospitalization and intense monitoring and care during the intervals at home. Since children are now living with this condition which adds a real caregiving burden to parents, her goal is to discover how parents address the many changes that are required to be both the parent and caregiver for this complex child. She is an active member of several professional organizations and a member of the research committee for both the Society of Pediatric Nurses and the Northeast Pediatric Cardiology Nurses Association.
Discovering the process of parenting the child with complex cardiac disease; conceopt of 'burden' for family with child who has congnital heart disease; family coping and management of acute, episodic hospitalizations for chronically ill child; parental perceptions of caring for/living with chronicall ill child