(9-7-99) -- A benefit is planned for Sept. 17 in Quincy for Carole Trainor, head of digital library technology at O'Neill Library, whose 7-year-old son is undergoing treatment in Minnesota for a genetic disorder that attacks nerve coverings in the brain.
Trainor is on family leave from Boston College while her son, Stephen Kenny, receives treatment at Fairview-University Medical Center for adrenoleukodystrophy, or ALD, the rare disease spotlighted in the movie "Lorenzo's Oil."
The boy faces months in the Minneapolis hospital in the wake of an experimental stem-cell transplant that doctors hope will arrest the progress of the terminal disease.
Friends hope to raise money to help defray the expenses that Trainor, a divorced mother of two whose younger son is only 20 months old, will incur traveling and maintaining an apartment near the hospital while Stephen convalesces.
"Her friends are pulling for her," said University Librarian Jerome Yavarkovsky. "We are deeply concerned for her son and pray for a happy outcome. We are encouraging concerned friends and supporters to contribute to the funds that have been established for her."
Tickets for the benefit dinner-dance at the Sons of Italy in Quincy are $20 and are available by calling Trainor's sister, Mary Trainor Goslin, at (781) 878-4103. In addition, two trust funds have been established: the Stephen Kenny Fund at Redberry Credit Union, 281 Neponset Ave., Dorchester, MA 02122; and the Trust for Stephen, care of Mary Trainor Goslin, at 11 Jay Rd., Norwell, MA 02061.
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